Girl, 5, diagnosed with rare childhood dementia

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Tilly has the rare genetic condition MucoPolySaccharidosis, a form of childhood dementia.

May 16, 2025 | News Editor

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For the constituency of this name, see Cleethorpes (UK Parliament constituency).

Cleethorpes
Central Promenade
Cleethorpes Cleethorpes shown within Lincolnshire
Population	31,853 (2001)
OS grid reference	TA310081
Unitary authority	North East Lincolnshire
Ceremonial county	Lincolnshire
Region	Yorkshire and the Humber
Country	England
Sovereign state	United Kingdom
Post town	CLEETHORPES
Postcode district	DN35
Dialling code	01472
Police	Humberside
Fire	Humberside
Ambulance	East Midlands
EU Parliament	Yorkshire and the Humber
UK Parliament	Cleethorpes

A beacon was lit on the top of Ross Castle to mark the Diamond Jubilee of Queen Elizabeth II on Monday 4 June 2012

Cleethorpes is a town and unparished area in North East Lincolnshire, England, situated on the estuary of the Humber. It has a population of 31,853^[1] and is a seaside resort.
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Girl, 5, diagnosed with rare childhood dementia

cleethorpes

Girl, 5, diagnosed with rare childhood dementia